So what happens now?

Hi all,

Firstly a huge thanks to everyone who sent me lovely messages after my post last week. I received so much love from friends and family and strangers alike. What lovely folk you all are! So many people I’ve seen this week have asked how I am and they genuinely mean it, it’s not just a greeting. Also, some people mentioned they had no idea how bad endometriosis can be so I’m glad to enlighten them. Spread the word people. It’s one of many ‘invisible illnesses’ that greatly impact people’s lives. Although I have to say I don’t like the term ‘invisible illness’. I think we all just need to look harder at the smiles that are warn like masks and start to see these illnesses which are so widespread you’ll see many people today who have them.
A comment on my Facebook page left this article. It is a very enlightening read concerning the male bias on medical research and teachings, even today. One quote from a medical professional that I couldn’t quite believe I was reading was “Do mad …

Can you describe it?

Over the last few weeks, as I’ve metnew people, I’ve been asked to explain what endometriosis is like. So I’ve tried explaining it and I don’t do a great job of it. So I’ve decided to write it down so more people can understand what women with this condition need and also perhaps to help other get diagnosed. It took me over 15 years from my first flare-up before I was diagnosed. I don’t want others to wait as long as I have and go through endless scans (which don’t show endometriosis) and being told the only thing to help it the pill. 
I’m frequently asked by the medical profession to describe it. Very often I’m met with an unsympathetic response and a misunderstanding of the pain I’m in every single day. There’s still a belief in the medical community (in my experience) that if you’ve been lucky enough to have borne children then it can’t be that bad. The condition does cause infertility and, until recently, that was why the diagnosis came about. But now far more is known so why are t…

The C word

Yes, Christmas is coming. It’s now November and the trees are dropping their leaves, the nights are getting colder and the sunshine is sought out for its warmth. I’ve never had an autumn like we are having here. It’s still reaching temperatures of 20°C at the moment! It’s unseasonably warm (we have been reliably informed by those who know this climate better) but next week it drops more. And there’s definitely a chill in the air. We are looking forward to finding some time to get out and explore the autumnal scenery we have around us. We’ve not been able to yet due to commitments and the whole family suffering with a virus and one case of streptococcal pharyngitis (strep throat). But plans are afoot. We’ve given in and are getting a car. With my energy issues and other commitments for everyone is just makes sense. I had to take my ill daughter to a doctor the other side of the city on the subway the other day which was not ideal as she was the one suffering with strep throat. I’m so g…

The complications of eating

Hi lovelies, how was your week? Mine was lovely, but busy. After having the big kids off school last week it was the little one’s turn this week. We did lots of chilling after doing the early morning school bus run. We went to friends for a play date/ crochet and chatting (age dependant). We made some Halloween cookies and oat bar bakes. Of course they were full of food colouring to give them the Halloween twist! I honestly have no idea what’s in the food colouring in his country but I wonder how good it can be if the colour is quite so vibrant! It makes me suspicious. Japan doesn’t have to list every ingredient like in the E.U. This food colouring is brilliant though. It comes in a powder form which you mix with water to the strength required. For the crazy colours that seem to represent Halloween baking it’s perfect.

So these aren’t as bad as they look. The green monster cookies are just vanilla cookies with rainbow sprinkles. The oaty Jack O’ Lantern bake is actually quite healthy. …

Thank crochet it’s Friday

Yesterday I felt miserable. In fact all week has been hard. My older kids have had half term holidays and of course that’s when a bad bout of pain decided to strike. They have wanted some entertaining but also chill time. A friend took them one day, they played with the youngest another but for some of the time I had to get myself moving and that wasn’t easy. Sometimes it’s just willpower. Sometimes it’s willpower combined with painkillers. I saw a quote yesterday from someone on a chronic illness page that summed it up: “You don’t know how strong you are until you need to be.” That feels so true. My husband has recently been promoted which is absolutely awesome and 100% deserved. This means he has more responsibility and some days has long hours. He tries to come home at a reasonable time but it’s not always possible. Heavy is the head that wears the crown, eh? Due to this I’ve tried to be even stronger than usual. I want him to have the head-space he needs for his new job. I want hi…

There’s a dragon in the pumpkin patch

Her she’s is - meet Bluey (as my daughter named her and quite right too as it’s her toy).

It’s always lovely when something you make for a present it appreciated, even more so when when it’s enthusiastically received. Our youngest, on her birthday a few days ago, walked into the dining room (we always display presents in a box with the cake outside and whatever I made sitting next to the cake) to be greeted by her gifts and the first thing she said was “Yay, my dragon!”. Now that’s the type of reaction you want. The dragon (later named Rainbowey, then changed to Bluey but most definitely declared a girl) then sat next to our little munchkin whilst she opened her cards and presents. After which the little dragon had to come to Legoland with us on our adventures. So she did. I managed to convince the birthday girl to leave the dragon in her bag for the dragon rollercoaster. “But she’s a dragon and can fly and will love it.” All valid points. Instead Bluey watched from the sidelines and f…

Dragons, mandalas and demons

I have felt really quite miserable of late having had an endometriosis flare up. This has left me exhausted and in pain and generally grumpy with my body. Although it does keep going so I shouldn’t blame my body. It has to shout at me to get me to stop and then tells me to sleep and gets ignored. Then it gives me no choice and sits me down hard and tells me to stay there until it is absolutely and completely necessary to get up again. Some days I sleep. Some days I’m not comfortable enough to sleep (this is in the precious time the kids are at school mind you). Some days I watch endless episodes of Star Trek: Voyager on Netflix. I could watch something more fashionable or gritty but it’s actually good comfort television for me akin to the likes of Gilmore Girls or Chuck. Something I enjoy and can get sucked into or something I can half watch and nap to or something I can crochet to. Basically something that takes my mind of the horrendous amount of pain I’ve been in!
So in an effort to…